The HSCT Article

Thursday, April 2, 2015

The HSCT Article

So, I saw an article about Stem Cell transplants for MS. I know that I saw it online somewhere, but can't remember where! MS brain, you know :)

Anyone that knows me is aware that I read everything about every subject that I find interesting. So, this subject hit me full on. This article and the blog that it is on was amazing!!

http://themscure.blogspot.com/2011/06/getting-into-hsct-treatment-if-you-have.html

After reading the above article and everything else that is written on George Goss's blog, I had my start! I also joined an amazing Facebook group, Hematopioetic Stem Cell Transplant -
MS & Autoimmune Diseases.

This group has all the information in the File section that lead me to where I am headed. I ended up
asking a few questions in the Facebook group and the answer's that came back to me were very
inspiring. I met an amazing mom, Anne, that helped her son go to Russia last year for his transplant.
She was pushy at first and I am so thankful for her!! She said to get those application letters sent now!!Worry about the money later!! We FB messaged more than I ever have with anyone!

My letter's went out to Chicago, Israel, Germany, Russia, Sweden and Italy. I was on my way!

Little did I know that it wouldn't be that easy!!

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What is MS

Multiple Sclerosis (MS) is a chronic degenerative disorder affecting the Central
Nervous System: the Brain and Spinal cord. MS is one of the leading causes of
neurological disabilities in young adults. MS affects both genders, more
commonly in women than men.

The Mayo Clinic lists four main patterns of Multiple Sclerosis:

Relapsing remitting: This type of MS is characterized by clearly defined flare-ups,
followed by periods of remission. The flare-ups typically appear suddenly, last a
few weeks or months, and then gradually disappear. Most people with MS have
this form at the time of diagnosis.

Primary Progressive: People with this less common form of MS experience a
gradual decline, without periods of remission. People with this form of MS are
usually older than 40 when symptoms begin.

Secondary Progressive: More than half the people with relapsing remitting MS
eventually enter a stage of continuous deterioration referred to as secondary
progressive MS. Sudden relapses may occur, superimposed upon the continuous
deterioration that characterizes this type of MS.

Progressive relapsing: This is primary progressive MS with the addition of
sudden episodes of new symptoms or worsened existing ones. This form is
relatively rare. (MayoClinic.com 1998, 2004).

The signs and symptoms of MS are fatigue, weakness, numbness, and difficulty
with coordination and loss of balance. A percentage of patients complained of
visual disturbances including blurry vision, patchy blindness and total blindness.

The disease process of MS involves the nerve cells called neurons. In Multiple
Sclerosis nerves are hardened in multiple locations of the body, the breakdown is
scattered irregularly throughout the body, decreasing aspect of functional abilities,
depending on which nerves are affected.

The cause of MS is unclear at this time. Presently research is done in the areas
of viral, immunology and genetic factors. Autoimmune response triggered by the
exposure to a virus or environmental trigger in genetically susceptible individuals.
The exposure to a virus causes reactions that form antibodies to fight the virus.
Antibodies attack the myelin instead of the virus- an autoimmune response.

There is no cure for MS. The medications given to the patient are for pain
management and relief of symptoms. Side effects of these medications are:
weakness, fatigue, grogginess, decrease in alertness, all these symptoms can
interfere with the performance of Activity of Daily Living (ADL).

Kristin's Trip To Israel - Stopping MS

Thursday, April 2, 2015

The HSCT Article

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